We are the wAIHA Warriors

The first community built for wAIHA patients everywhere.

A Note from Our Executive Director

If you are affected by warm autoimmune hemolytic anemia – whether as a patient with the condition, a caregiver or a provider – you are a WAIHA Warrior. You are part of our effort to share information, resources, innovation and support.

Thank you for being part of our community!

Karen Jones

Warrior Advisory Board

In order to help raise awareness and build a community for this rare condition, our organization brings together leading wAIHA patient voices with the brightest researchers and advocacy teams in the field. Learn more about us:

Our Patient Advisory Board

Our Medical Advisory Board

Our Board of Directors

Warrior Advisory Board

In order to help raise awareness and build a community for this rare condition, our organization brings together leading wAIHA patient voices with the brightest researchers and advocacy teams in the field. Learn more about us:

Who are

If you are affected by warm autoimmune hemolytic anemia – whether as a patient with the condition, a caregiver or a provider – you are a WAIHA Warrior. You are part of our effort to share information, resources, innovation and support.  Thank you for being part of our community!

Share Your Warrior Story

For some, the diagnosis of warm autoimmune hemolytic anemia is a long process, involving lots of testing and ruling out other conditions; for others, it is complicated by multiple conditions like lupus or leukemia. And for some, quick diagnosis and treatment has led to a quicker recovery.  

Because every story and experience is different – we hope you’ll share your experience so that we can learn from, understand, and celebrate your journey.

Submit your story

Additional resources

These resources were hand-selected by our advisory team to help offer more navigational support for anyone living with or supporting someone with wAIHA. If you have others you'd like to see featured, please get in touch with us at team@waihawarriors.org!

Get in touch

Rare Disease Communities

Rare Connect
A safe, easy to use platform where rare disease patients, families and patient organizations can develop online communities and conversations across continents and languages. RareConnect partners with the world's leading rare disease patient groups to offer global online communities allowing people to connect around issues which affect them while living with a rare disease.

Learn more

Rare Share
RareShare is an online social hub for those affected by rare medical disorders. Whether you are a patient, family member, friend of the family, or healthcare professional, you are invited to join RareShare. Our goal is to become the #1 aggregator of information about rare disorders on the Web. We're still young, but we hope you decide to join us as we grow.

Learn more

médicalistes
Médicalistes is a community for rare disease patients and caregivers whose preferred language is French. Come join the conversation below!

Learn more

Peer mentoring

Want to connect with another person diagnosed with WAIHA? While every journey is different, our team will work to find a mentor that has a similar experience to yours.

Get connected

Cancer Communities

inspire
Millions of patients and caregivers come to Inspire for information and support from others like them in our private, anonymous, and safe environment. Join a community here and get help in every step of your journey from diagnosis through deciding treatments, to coping, to managing your condition.

Learn more

Navigating care
If you’re just beginning your journey, we’re here to point you in the right direction. Equip yourself with information about cancer. Cancer treatments and medications are constantly changing. We’re staying on top of the latest information for you.

Learn more

Cancercare
A cancer diagnosis turns a person’s world upside down — emotionally, physically and financially. CancerCare® can help.

Learn more

Caring bridge
Your free CaringBridge website or Mobile App has all the tools you need to keep your family and friends updated during a difficult time. Because we’re a nonprofit, we put your needs first.

Learn more

Friend 4 life
To help persons recently diagnosed with cancer and their loved ones navigate the path through diagnosis, treatment and recovery by pairing them with a trained survivor of a similar experience so they can face cancer with someone who's been there.

Learn more

cancer support community
We believe that Community is Stronger than Cancer. We are a relentless ally for anyone who strives to manage the realities of this disruptive disease.
So no one faces cancer alone.

Learn more